Between autonomy and uncertainty
Parental experiences of inclusion and future expectations in families of individuals with autism spectrum disorder
DOI:
https://doi.org/10.56162/transdigital582Keywords:
autism spectrum disorder, families, social inclusion, future expectations, family resilienceAbstract
This study aimed to understand how parents of individuals with autism spectrum disorder construct their expectations for the future regarding autonomy, social inclusion, support networks, and experiences of stigmatization. Using a qualitative interpretive approach and a systemic perspective, a narrative-phenomenological design was employed. Data were collected through in-depth, semi-structured interviews with parents and primary caregivers affiliated with a civil society organization and analyzed through reflective thematic analysis. The results showed that autonomy is conceived as a horizon of future security rather than an individual goal, while fear and uncertainty are related to the fragility of institutional support. Furthermore, inclusion is understood as a social obligation, and community networks emerge as key factors in family resilience. The study concluded that parental expectations are shaped relationally and contextually, underscoring the need for inclusive, systemic public policies and interventions.
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Copyright (c) 2026 Marcela Rábago de Ávila
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